Rebecca Pender is a mother of 3 young girls Hannah, Molly and Daisy, and is based in Glasgow, Scotland. Her eldest daughter Hannah lives with a rare genetic condition called Inv Dup Del 8p. There are only 80 recorded cases worldwide.

Passionate about inclusion Rebecca used her maternity leave following the birth of her 3rd child to take part in the internationally recognised Partners in Policymaking programme. This is a leadership course for parents of disabled children and disabled self advocates and teaches the skills, knowledge and confidence to challenge to social constructs of disability, advocate for disabled peoples right and against ableism and to change the narrative of inclusion locally, nationally and internationally.

As well as her blog Rebecca also guest blogs for several other sites including Family Fund. She also speaks publicly, advocating for research and support for rare genetic conditions, support for parents of disabled children, promoting the concept of collaborative care between healthcare professionals and advocates of those living with rare conditions. She has spoken in Scottish Parliament about the “Power of the Parent/Patient voice” and has several exciting projects in the works to raise the profile of awareness of rare conditions and highlighting the need for better support in place for families.

She is also open and honest about Mental Health and the importance of speaking out when things are not okay and supporting others in finding their voices.

%d bloggers like this: